It Should Have Been Me........

I've had a few setbacks in the past week, lots of issues with my chest and yet another abdominal infection has left me in a lot of pain, feeling like I'm back at square one and still unable to sleep at night. As I lay awake last night, watching each hour pass by until it was time for Patrick to get up for work and eventually I dozed off at I guess what must have been around 9am. 

At around 11:30am, I am awakened from my slumber by the sound of my phone beeping, thinking it was just a text message, I was prepared to ignore it and just respond later, but it was kinda niggling at me for some reason, so I picked up my phone to see that I had received an email from Gordon entitled 'New Blog', but there was no content to the email, not even an invitation to check for spelling mistakes and grammatical errors (I'm not a pedant, honestly...!!!).

I open the Aculife website on my phone to find a post from a very excited Gordon about his experience yesterday. Yesterday some pretty significant ground was broken. Yesterday two worlds collided and became one. Yesterday saw the welcoming of Complimentary Medicine into the world of Western Medicine. Yesterday was the day when a Practitioner of Traditional Chinese Medicine was welcomed into and permitted to work alongside the finest Doctors in the field of fertility and reproductive medicine. That's pretty amazing.

You see, up til now it has been a battleground where although acupuncture has been used to compliment fertility treatment for many years, It has been seen by most IVF Clinic Directors as a waste of time, as some Mickey-Mouse, complete waste of money attempt at giving yourself some sense of false hope. I've even been directly discouraged from having acupuncture as a compliment to my fertility journey by an IVF Clinic Director, despite its positive effects being unquestionably proven. 

My experience has primarily been that acupuncture is somewhat of a taboo subject inside the walls of IVF Clinics and is met with a head-tilted, nodding sympathetically gesture of feigned empathy to the tune of 'Ah sure, you'll try anything when you want something so badly'.

This has meant that the morning of Transfer, the day that you need to be at your most relaxed, becomes the day when you have to perform a feat of logistically epic proportions on top of undergoing the whole Transfer process. Your timing must be precise... especially if, like me... you have to travel the morning of the transfer. 

My experiences have been as follows... So, Transfer is at 12, but I need to call the Clinic at 10:30 to see if the embryos survived the thawing process, but in order to transfer at 12, I need to be at the Clinic by 11:30 at the latest and I need to leave at least 30 minutes of travel time between the Acupuncture Clinic and the Fertility Clinic to allow for traffic and trying to find parking and any other delays that may arise, so that means I need to leave the Acupuncture Clinic by 11, so I need to arrive at the Acupuncture Clinic for Pre-Transfer acupuncture at 10:15, which means that I need to leave home at 9am. Leaving home at 9am is not a problem, but having the constant worries of 'I'm going to be late......... I'm going to miss my appointment......... Oh God, why is there so much traffic???........ It's just raining, why has the whole world decided to drive at 5 miles an hour???... Why is there never anywhere to park?...' Along with the worries of ' I wonder if my embryos have even survived......... I've come all this way and I could be told that I have no embryos to transfer........   Only 20 more minutes til I can call the Clinic to find out.... seriously, is this clock going backwards...???' And once you have completed the Transfer, you then have to take some time to recover, before returning to the Acupuncture Clinic for Post-Transfer treatment...!!!

All of that stress and worry on top of what is a hugely stressful procedure anyway. 

Wouldn't it be wonderful if you could arrive at the Fertility Clinic on the morning of Transfer, go to your prep room (which doubles as your own private recovery room), have your Acupuncturist there to treat you immediately before and after the Transfer and then go home and relax? What a different process that would be and that is what took place yesterday at SIMS. The burden of that extra stress was taken from the patient and distributed between the Fertility Doctors and the Acupuncturist. They had to figure out the logistics and the timing and it was up to them to make sure it all went as smoothly as possible.

And from what I understand, it was something quite amazing. You can read Gordon's blog post here. 

What an amazing development and one he should be very, very proud of. He has created a synergy, he has built a bridge over sometimes hostile/sometimes toxic waters and that is an amazing step, a huge achievement........... So why have I been sitting here in a pathetic state of misery, crying inconsolably since reading it?

It should have been me... and that is not just me saying generally 'it should be me, when is it going to be my turn?'........ it actually should have been me.

On my second visit to SIMS Clinic, during my first full consultation with Dr. Walsh when we were discussing our next cycle (this was before we got the genetic results), I asked Dr. Walsh about acupuncture before and after Transfer and he responded that he would highly recommend it and knowing my connections with Gordon and Aculife Clinic, he suggested that I ask Gordon to recommend an Acupuncturist in Dublin that I can attend before and after Transfer. So... me being me, knowing that Gordon is already in discussions with Dr. Walsh over trying to create some sort of 'synergy' between the two Clinics, and also being of the long-standing impression that if you don't ask - you don't get.... explained to Dr. Walsh the importance of having your own Acupuncturist by your side, not just any Acupuncturist, but the Acupuncturist who has been on this journey with you, the Acupuncturist that you know, trust and respect, but also... the Acupuncturist that knows you, and knows what will work best for you. (Seriously, if I'm not gona let 'just anybody' cut my hair, I'm certainly not going to want 'just anybody' influencing the outcome of the most important procedure of my life...!!!). Aided by Patrick's smirking statement 'if its not gona be Gordon, its not gona happen'.

 - Dr. Walsh agreed to it and thanked me for opening his eyes to the connection between the patient and her Acupuncturist. He told me to have Mr. Mullins contact him about it and they would put arrangements in place for Gordon to be present in SIMS immediately before and after my next transfer. He explained to me that it is not something that is usually allowed, but as they are in talks about it anyway and because of my long-time connection with Gordon and Aculife Clinic, it would actually be a good opportunity to trial and assess how it would actually work in practice.

Reading Gordon's blog post, I wanted to be so happy for him and I so appreciated that he had notified me directly of this blog post - I think it would have hit me a lot harder if I had just casually come across it. I couldn't help but have this be a huge reminder of just how much things have changed for me, Of where I am versus where I thought I would be. Yet again a reminder that I am being left behind and the world is moving ahead regardless. I felt like he was handing me the most amazing ice-cream with one hand, but chopping my arm off with the other. A fantastic step for fertility treatment, but one that is becoming further and further from my reach.

A follow-up email from Gordon told me that he was conscious of how it would make me feel and that even yesterday, as he entered SIMS Clinic to break this new ground, he was very aware that 

'This was supposed to be Anne-Marie'

I am honoured that I even crossed his mind yesterday, and to that extent I guess I do feel that perhaps I was part of the process in some tiny way and I know I will be very proud of that... once the initial blow has passed. 

It really shows the strength of Gordon's dedication and determination that he traveled from Cork to Dublin to carry out Pre and Post Transfer Acupuncture for one patient. He is a true advocate for this and his understanding of what a fertility patient actually goes though is second to none.

Now... I wonder how he feels about travelling to the Czech Republic for Pre and Post Transfer Acupuncture........ ;-)

Pre-Op Freak Out.......

So yeah... I'm having surgery in just over 6 hours. It is advisable to get a good night's sleep before any kind of operation or procedure..... so why can't I sleep...??? Oh Yeah.... COZ I'M HAVING SURGERY IN JUST OVER 6 HOURS...!!!

I'm not sure what is bothering me more... the being sliced open OR the fact that they have to use a large metal speculum as part of the hysteroscopy procedure, Ok I know I'm going to be asleep for all of this and won't know a thing about it, but they're gona be sticking something that closely resembles a car jack up my you-know-what... (we all know how well I do with the medium sized speculums they use for transfers)... while slicing me open to complete that and the many other procedures that they have to do.

One of my least favourite parts of any surgical procedure is the clean-room right outside the operating theatre, for one thing, it has a very distinct smell, a memory-provoking smell which I absolutely hate, but apart from that, its the loneliness, I will be alone at this point. I will have to leave Patrick at the end of the corridor and I will be alone... being alone is a lot scarier when you are half blind and can't have your glasses or contact lenses with you, unable to focus on anything, visually or physically, I suppose. 

The anaesthetist will come and talk to me, he'll make some jokes to try and put me at ease, I'll imagine that I politely giggle, but in fact I'll probably look at him like he's bloody insane... how the hell could I be at ease...??? Then the surgeon will come and talk to me, make sure he has everything in order and is 100% clear on what he is to do. Meanwhile, I will see many nurses, each of then trying to reassure me, while also trying to assure themselves and the anaesthetist that I am in fact the right patient, with the right date of birth. They will be fascinated with my story, they always are and it is always a fantastic talking point, a way to keep the conversation flowing while they wheel me in to the operating theatre. It always reminds me of how my childhood image of being abducted by aliens looks (I have two older brothers, who spent the first 8 years of my life thinking up creative ways to scare the sh*t out of me...!!!). The huge round lights, the people wearing masks, all of the equipment..... and then there's the table. They will instruct me to transfer myself from the trolley to the operating table. Every time I feel like point blank refusing, but I do it anyway. The instructions will follow to find the outside of the table at each side and centre myself on the table. They will then tell me to lay back and relax (Relax..... are you freakin kidding me...???). I'll lie back a certain amount, but not fully. I need to be semi-sitting up, I need to be able to see (theoretically) what is going on around me, so they will either give me something to put under my head or they will raise up the head of the table for me. They will keep talking to me, keep reassuring me... while the anaesthetist searches my arms for a decent vein to put the cannula into. He'll have trouble with this because I have terrible veins but eventually he will find one. Once the cannula is in, he will put a relaxant through it and suddenly I will feel like this ain't so bad. Then I will keep talking... and talking... and talking... :-) In just a few minutes, he will tell me that I'm going to be going off to sleep now as he injects the white liquid into my arm... it will burn, my veins will feel like they are on fire. I will lock my eyes with the eyes of one of the nurses and I will fight with complete stubbornness, I am, of course, fighting a losing battle because within seconds I will lose control of my eyes...... and then.... I'll wake up. As I'm coming around I will feel them removing the tube from my throat... that's rather unpleasant, but it is very quick... and I will notice myself talking... and talking... and talking, probably spouting some serious mumbo-jumbo because the nurses are usually laughing.......... and then the pain in my abdominal area will hit me, it kinda takes your breath away when it hits and the nurses will work as quickly as they can to give me some morphine to take the edge off of it. 

And then I will realise that it is all over, and all of that worrying and freaking out was for nothing. I will spend a while in the recovery room and then eventually they will wheel me back to my bed. The transfer from trolley to bed is always a seemingly impossible feat but somehow I always manage it. All I will want to do is call Patrick and let him know that I am out of theatre. I will be on oxygen for a few days after the surgery as I tend to have respiratory problems after anaesthesia, but once that has stabilised, I will want to come home. Several times I have come home too soon after surgery because I just so badly want to get home. I hate being in hospital, I tend to get very down and I miss Lulu something awful. This time I will follow the Dr's instructions on when it is safe for me to go home, I've never had an operation this big before, so I think its best that I follow the instructions I am given.

And that's pretty much that. I will go home and will rest and try my best to keep positive.

I was seriously freaking out for the past few hours, but somehow - writing this has helped to settle my nerves and anxiousness. It has reminded me that none of this is a surprise to me, I know exactly how it is going to play out, I know exactly how it is going to happen and I will get through it.

It's times like this that I find myself being so thankful that I ever started this blog in the first place. Writing helps me and I know that I can turn to writing when I need to and it will help me. Putting words on the screen like this really does help to clarify what is really going on and to get to the root of the emotions I am really feeling, the ones that are being clouded by nerves and anxiousness.

I'm not sure I'll be any more able to sleep than I was an hour ago, but I think having written this will help me to have an easier time tomorrow morning. I know what is going to happen... I just have to get through it... one step at a time.......